Developmental Disabilities Reform Act Rights (K.S.A 39)
The Kansas Developmental Disabilities Reform Act guarantees you certain rights once you have been determined eligible for developmental disability services. These rights will be reviewed with you each year to ensure you are aware of and understand them.
YOUR Rights Under the DD Reform Act:
Self-advocacy is standing up for what you want in your life. Here are some of the groups in Kansas that can help you to take a stand for you.
Self-Advocate Coalition of Kansas (SACK)
(SACK) is a statewide advocacy group made up of adults with intellectual and/or developmental disabilities, the majority of whom receive services through the Kansas Developmental Disabilities Service System. SACK encourages and teaches people to speak up for themselves and to obtain the highest possible level of independence.
2518 Ridge Ct #236
Lawrence, KS 66046
Families Together is a state-wide, non-profit organization serving families in Kansas with a son or daughter with a disability. It is dedicated to a society that includes and values all people, encourages, educates, and empowers families that include a child/youth with disabilities. There are two regions that cover our three counties of Coffey, Osage and Franklin (see bolded counties).
Kansas City Parent Center
Phones: (913) 287-1970 V/TTY; (877) 499-5369 V/TTY
Counties served are Allen, Anderson, Bourbon, Cherokee, Crawford, Coffey, Johnson, Labette, Leavenworth, Linn, Miami, Montgomery, Neosho, Woodson, and Wyandotte.
Topeka Parent Center
Phones: (785) 233-4777; V/TTY (800) 264-6343 V/TTY
Counties served are Atchison, Brown, Chase, Clay, Cloud, Dickinson, Doniphan, Douglas, Ellsworth, Franklin, Geary, Jackson, Jefferson, Jewell, Lincoln, Lyon, Marshall, Mitchell, Morris, Nemaha, Osage, Ottawa, Pottawatomie, Republic, Riley, Saline, Shawnee, Wabaunsee, and Washington.
Big Tent Coalition
The Big Tent Coalition is an association of organizations and individual advocates who believe in enhancing choices for home and community-
based services for disabled and elderly Kansans through: Elimination of all HCBS waiting lists and expansion of community capacity, Funding increases for these vital services, High-quality services, supports and staff
Disability Rights Center of Kansas
The Disability Rights Center of Kansas (DRC), is a public interest legal advocacy agency empowered by federal law to advocate for the civil and legal rights of Kansans with disabilities. DRC is the Official Protection and Advocacy System for Kansas and is a part of the national network of federally mandated and funded protection and advocacy systems. As such, DRC advocates for the rights of Kansans with disabilities under state or federal laws (ADA, the Rehabilitation Act, Federal Medicaid Act, Kansas Act Against Discrimination, etc.)
635 SW Harrison St., Ste 100
Topeka, KS 66603-3726
Topeka voice: 785-273-9661
Toll free Voice: 1-877-776-1541
Toll free TDD: 1-877-335-3725
Centers for Independent Living (CILs)
The purpose of independent living is to maximize the leadership, empowerment, independence and productivity of individuals with disabilities, and
to augment their integration and full inclusion into the mainstream of society. This mission is carried out through a statewide network of 10 Centers for Independent Living (CILs). CILs are not residential facilities. Instead they offer the following core services: information and referral, individual and systems advocacy, peer support, independent living skills training and services to support deinstitutionalization. The two CILs that cover our CDDO area are: RCIL (Osage and Coffey counties) and Independence, Inc. (Franklin county).
Lawrence, KS 66044
Resource Center for Independent Living (RCIL)
Osage City, KS 66523